It is always funny to see new therapists grow wide-eyed when I tell them we are homeschooling. I still haven't decided if this is because of my limitations and their doubts about the feasibility, or if is commentary on societal views on home education in general? I suspect it is some of each?
My physical therapist (who remembers my condition in the rehab hospital) was actually pleasantly surprised at the scope of my abilities and the advances we have seen over the past half a year. He is more concerned about my left arm and shoulder even than about my ability to walk.
At one point, I did something today (I think walking with a cane and then without any support, therapeutically, but not with permission to try outside of my house) and he commented that, when he had first met me in the hospital, he never would have dreamed I would ever regain to that level in my whole lifetime!
He says he envisions me ultimately walking with just a cane, or possibly even without an assistance device of any kind. For now I am still to use the walker, or at home sometimes the cane, but inside only. He said he could tell that I was going to be "a lot of fun to work with."
The occupational therapist was in awe that I'm even still alive to come into her office. She reasoned that it was probably my young age that had saved my life and been to my advantage. I told her it was God that had saved my life. My friend (thank you, so much, for taking me, Mandy) informed her that my survival was the answer to many prayers. She really didn't respond to any of that.
She did give me several new arm and balance exercises and explained a lot more of the consequences of cerebellum damage, and some good coping strategies to counter those consequences, I had not had explained before. She said she is very glad I am there with neuro experts now and that it was a very good decision to come their way.
We talked about some of my limitations and advances, such as how speech therapy had to really work with me to do basic mathematics in the rehab hospital because even preschool level, basic math confused me. And how now it is my 12-year-old's algebra that stumps me, not 2+2 anymore.
She also said that even as tight and non-functional as my left arm has become, that she has many other patients who would "kill" to have the kind of mobility I'm now finding in my left hand. She says my left arm would likely always be clumsy but that we are going to fight to regain what use we can from it.
She liked that I am making myself go through the Sign Language alphabet each day to stretch the muscles, tendons and encourage mobility, though I have some letters I can't form well and have to model movements with my right first, then mirror with my left, to bring about the fine motor movements I do accomplish. She noticed deficits in both arms, with the left being pronouncedly more extreme.
The therapists were not at all surprised to hear how I am doing, emotionally. The OT went so far as to tell me my reactions of emotional upheaval are "very common" and to proceed to tell me some things about my conditions that I had already known, but not shared with her yet. She asked if she could keep a copy of some of the research I had brought in to share with her, for her records.
I had a pretty bad weekend and Rick took a lot of emotional attack and fall out. I'll be seeing my neurologist this afternoon, so we'll see if he has any new insight for us.
Mornings still tend to be my hardest time of day. This morning I woke up smiling and peaceful. A rarity, but I'm thankful. This leads me to today's verse: